Finding Strength in the Battle Against Thymoma: A 10-Year Journey of Resilience and Hope

In 2014, my life changed forever. I was diagnosed with thymoma, a rare form of cancer, and my doctor at that time told me that I had only two months to live if I didn’t undergo surgery. At that moment, fear and uncertainty overwhelmed me, but I also made a choice: I would fight.

The questions people often ask me are, “What did it feel like? How did you get cancer?” Looking back, the initial signs were subtle yet alarming—shortness of breath, drooping eyelids, and the inability to speak for more than 10-20 minutes. My facial muscles, especially on the right side, would tire easily. These symptoms pointed to myasthenia gravis, a rare neuromuscular disease that often accompanies thymoma. To add to the challenge, I was also dealing with an autoimmune disorder.

The Journey Begins

In June 2014, I met Dato’ Dr. M. Amir Shah, a caring and highly skilled radiologist and oncologist. “I’ve never handled a thymoma case like yours before,” he said, “but we will do our best. The best medicine is a joyful heart.”  Those words became my mantra as I embarked on a grueling treatment regimen: 12 cycles of chemotherapy and 33 sessions of radiation. By some miracle, the treatments worked, and I was cancer-free by 2018.

But cancer is a relentless adversary, testing not only the body but also the spirit. In 2018, I faced yet another battle as thymoma made its unwelcome return. This time, I endured an intense treatment regimen that included four rounds of chemotherapy and 20 sessions of radiation. The journey was grueling, but once again, I emerged victorious, defeating the cancer for a second time.

Yet, the struggle was far from over. In 2023, the cancer came back for a third time—a devastating blow after years of fighting. Despite undergoing six rounds of chemotherapy, the cancer showed no signs of retreat. Those months were emotionally and physically draining, filled with uncertainty and the constant fear of what lay ahead.

Finally, in January 2024, hope was restored. After undergoing seven additional chemotherapy sessions and five focused radiation treatments at Icon Cancer Centre in Island Hospital, Penang, a PET scan in October 2024 confirmed that I was cancer-free once more.

A Battle Worth Fighting

Fighting cancer is like waging a war. It is exhausting, painful, and at times, defeating. Yet, through every stage of this journey, Dato’ Dr. M. Amir Shah and his team have stood by my side. His genuine care, expertise, and 24/7 availability made the unbearable seem possible. Even when I texted him late at night, he would always respond promptly, offering guidance and reassurance. Dato’ Dr. Amir’s unwavering dedication has been instrumental in my 10-year fight against thymoma.

Lessons from the Battlefield

After a decade of battling cancer, here are a few lessons I’ve learned that may help others navigating similar struggles:

Make Peace with Cancer

Accepting your diagnosis is the first step. Anger, sadness, and disappointment are natural, but they won’t help you heal. Instead, focus on facing the journey with a sense of calm and acceptance.

Control Your Emotions

Chemotherapy often leaves you feeling irritable and uneasy. When these feelings arise, remind yourself—and those around you—that it’s the medication talking. Communication is key to maintaining relationships during such a difficult time.

Strive for Independence

While it’s important to accept help, try to be as self-reliant as possible. Cancer is a long battle, and relying entirely on others can take a toll on both you and them. Maintaining some level of independence can also boost your confidence and sense of purpose.

A Message of Hope

Cancer is a formidable opponent, but it is not invincible. My journey has taught me that with the right support system, a resilient spirit, and a “joyful heart,” it is possible to overcome even the most daunting challenges.

To those who are currently battling cancer, remember: you are stronger than you think. Surround yourself with people who uplift you, trust your medical team, and never lose hope. Life, even amidst the darkest storms, is worth fighting for.

This is my story, and I hope it inspires you to keep fighting yours.

By Imelda Masni Juniaty Sianipar